Windy today. It is kinda kicking my butt. But, I was able to vacuum after my morning nap. Then I had to take an after vacuuming nap. It's kinda of a joke around here. Dan is home today and tomorrow. Ozzie really loves that.
Well, I'm going to start some soup that I'm making for a late lunch/early supper. I slept through lunch so I'll just serve Dan an early supper:)
Monday, October 31, 2005
Sunday, October 30, 2005
Skated yesterday. I did well, but tired. Went to bed at 7:30pm. Just really bushed.
Church today. I took a nap after we ate lunch. Slept really hard until about 4:30pm.
We went to evening church.
Today at 7:30pm marks the 4th year anniversary of my heart attack. It's funny how it is something that both Dan and I remember without any prompting.
I'm tired tonight and feeling a little fuzzy/anxious. I'm a little off balance as well. Very frustrating since I use to have such great balance.
A lot of emotional strain today. Tomorrow is my rest up day. I love the time change! It is actually daylight at 6:30am! It makes it so much easier for me to get up.
Church today. I took a nap after we ate lunch. Slept really hard until about 4:30pm.
We went to evening church.
Today at 7:30pm marks the 4th year anniversary of my heart attack. It's funny how it is something that both Dan and I remember without any prompting.
I'm tired tonight and feeling a little fuzzy/anxious. I'm a little off balance as well. Very frustrating since I use to have such great balance.
A lot of emotional strain today. Tomorrow is my rest up day. I love the time change! It is actually daylight at 6:30am! It makes it so much easier for me to get up.
Friday, October 28, 2005
Dan home today. I'm doing pretty well. Pretty much back to my normal up and down's. I took a really long and hard nap this afternoon.
Doing so much better the last couple of days. Tomorrow is skating... a long day for me, but I can rest when I get home :)
Dan works tomorrow.
The wind is really blowing today. Dan thinks that is a factor in how I feel. I try not to think about it as the wind blows a lot around here.
Until tomorrow.
Doing so much better the last couple of days. Tomorrow is skating... a long day for me, but I can rest when I get home :)
Dan works tomorrow.
The wind is really blowing today. Dan thinks that is a factor in how I feel. I try not to think about it as the wind blows a lot around here.
Until tomorrow.
Thursday, October 27, 2005
Yesterday was a pretty good day. No nap! But, I did get really, really tired by the time Awana's came around. But, I made it and drove home. I layed down when I got home and then went to bed shortly after.
I got up in the middle of the night last night to go to the bathroom and whew, was I ever dizzy. My blood pressure must have been really low. Like pre-pass out feeling. It was all I could do to make it back to bed. I didn't sleep well the rest of the night. Tossed around the rest of the night.
But, by morning I felt better. Plus, Dan is off today and tomorrow so I got to sleep in an hour.
No nap today and went in to Interim for three and 1/2 hours. But, boy am I feeling pretty exhausted right now. I'm going to rest before I fix supper.
I got up in the middle of the night last night to go to the bathroom and whew, was I ever dizzy. My blood pressure must have been really low. Like pre-pass out feeling. It was all I could do to make it back to bed. I didn't sleep well the rest of the night. Tossed around the rest of the night.
But, by morning I felt better. Plus, Dan is off today and tomorrow so I got to sleep in an hour.
No nap today and went in to Interim for three and 1/2 hours. But, boy am I feeling pretty exhausted right now. I'm going to rest before I fix supper.
Tuesday, October 25, 2005
I'm dragging today. I'm really fighting the fatigue. The easiest way to explain fatigue is to imagine what it would feel like to carry around a cement block in each of your limbs and one in your chest, then throw some thick mud in your brain box and try to think through it and move.
The only reason I'm explaining fatigue is until I experienced it, I didn't have a clue as to what it really meant. I use to think it just meant you were really really tired. I always figured people with fatigue just needed to buck up and push through it. Boy, was I ever wrong. I didn't have a clue. I was wrong.
My heart rate is still running a little high. Today it ranged from 98 to 112. I got up at 6:30 and fixed breakfast and made Dan's lunch and his two snacks. It was all I could do to stay up until he left at 7:30. (If I lay down before Dan goes to work, he worry's all day and calls a lot. I've learned not to lay down until he actually leaves. I hate to worry him for nothing.) So, I fell asleep and slept really hard until my home med monitor nurse system started going off at 9am. She hollers at me every five to ten minutes for 1/2 an hour until I either get on the scale or my 1/2 hour is up.)
I sat up on the couch for about 1/2 an hour trying to wake up. I took Ozzie outside for a little while and then came back in and rested on the couch until Ozzie wanted to go back out an hour later. It was just a struggle all day to get my act together. My heart rate really started messing with me this afternoon and I became really, really fatigued. But, I went to the ice rink. Thank goodness for Ellie. We had our private lesson and then she helped me to teach my power class.
On days like this, I must admit that giving up skating and everything else seems so much easier than to fight the fatigue to sit up let alone walk around. But, I know I won't feel this bad everyday. It is just my body readjusting to the meds and getting them back into my system. But, fighting the up and down heart rate, the low blood pressure and and the fatigue makes me feel bad.
Sorry this post is so depressing. I'm just having one of those days. It will be better tomorrow. Tomorrow I skate for an hour and then have AWANA's at church.
Right now, I just want to sleep. I've managed to stay up this long, only because Dan, Ozzie and Max have taken over the entire bed. They do look darn cute.
The only reason I'm explaining fatigue is until I experienced it, I didn't have a clue as to what it really meant. I use to think it just meant you were really really tired. I always figured people with fatigue just needed to buck up and push through it. Boy, was I ever wrong. I didn't have a clue. I was wrong.
My heart rate is still running a little high. Today it ranged from 98 to 112. I got up at 6:30 and fixed breakfast and made Dan's lunch and his two snacks. It was all I could do to stay up until he left at 7:30. (If I lay down before Dan goes to work, he worry's all day and calls a lot. I've learned not to lay down until he actually leaves. I hate to worry him for nothing.) So, I fell asleep and slept really hard until my home med monitor nurse system started going off at 9am. She hollers at me every five to ten minutes for 1/2 an hour until I either get on the scale or my 1/2 hour is up.)
I sat up on the couch for about 1/2 an hour trying to wake up. I took Ozzie outside for a little while and then came back in and rested on the couch until Ozzie wanted to go back out an hour later. It was just a struggle all day to get my act together. My heart rate really started messing with me this afternoon and I became really, really fatigued. But, I went to the ice rink. Thank goodness for Ellie. We had our private lesson and then she helped me to teach my power class.
On days like this, I must admit that giving up skating and everything else seems so much easier than to fight the fatigue to sit up let alone walk around. But, I know I won't feel this bad everyday. It is just my body readjusting to the meds and getting them back into my system. But, fighting the up and down heart rate, the low blood pressure and and the fatigue makes me feel bad.
Sorry this post is so depressing. I'm just having one of those days. It will be better tomorrow. Tomorrow I skate for an hour and then have AWANA's at church.
Right now, I just want to sleep. I've managed to stay up this long, only because Dan, Ozzie and Max have taken over the entire bed. They do look darn cute.
Monday, October 24, 2005
Yesterday, Sunday, was a better day health wise. I was a little anxious last night and grabbed the silly putty. I worked with it for a couple of hours while I watched tv and waited for my bendadryl to take effect.
Today is a much much better day. I restarted the florinef today as well. On Friday I had only restarted the beta blocker. Anyway, today feels much better than I had felt all last week. I was actually able to get some household chores done and worked out in the greenhouse for about 45 minutes. Ozzie and I sat outside and soaked up some rays for over an hour this afternoon. I caught up on some piles of reading (magazines, newspapers, etc.)
I even showered today and still felt like doing things afterwards.
So, I can get back to skating this week and Interim and church activities. I'm back to my normal only semi-puny self and not the lump on the couch self!!!!
Tomorrow is skating!
Today is a much much better day. I restarted the florinef today as well. On Friday I had only restarted the beta blocker. Anyway, today feels much better than I had felt all last week. I was actually able to get some household chores done and worked out in the greenhouse for about 45 minutes. Ozzie and I sat outside and soaked up some rays for over an hour this afternoon. I caught up on some piles of reading (magazines, newspapers, etc.)
I even showered today and still felt like doing things afterwards.
So, I can get back to skating this week and Interim and church activities. I'm back to my normal only semi-puny self and not the lump on the couch self!!!!
Tomorrow is skating!
Saturday, October 22, 2005
My morning wasn't too bad and I felt pretty good. Yesterday I had decided that I would go ahead and get a sub for my skating classes and cancel my 3 privates. But, this morning I was wondering if I could have skated. Well, my good feeling didn't last very long. By 11 I was starting to feel a little woozy and by 1:30 I was down for the count. And it is now after 7pm and I still feel pretty bad. My blood pressure all day has been 80/47 all day long.
My brain is foggy and I'm very tired.
I will close for now. It will just take a few days for my meds to get leveled out. I'll be better by Monday or Tuesday.
My brain is foggy and I'm very tired.
I will close for now. It will just take a few days for my meds to get leveled out. I'll be better by Monday or Tuesday.
Friday, October 21, 2005
Lana picked me up around 9:30 am. I was in the doctor's office before 10am. I just rested on the couch while I waited. I didn't feel much like reading while I waited. My fatigue has been slowly getting worse all week. They called me back into the room at about 1030. It is too fatiguing to set up so I went ahead and layed down.
A little after 1100 the PA student came in and we got started. Dr. Li poked his head in and said he wanted to do something a little different today, he wanted my hooked up to the heart monitor while we did the various blood pressure checks. It turned out to be a good thing as during the entire process my heart rate would rapidly change. One moment it would be at 70 then it would jump up to 130's then it would drop back down to the 70's and 80's, then it would jump back up to 140's, 150's and even 160's. Then three different times my heart rate would be way up and then boom, it would rapidly drop down to 35 and the low 40's. It freaked the PA student out a little. She asked me if I was okay. I was a little freaked out too. In this entire four year process I have never seen my heart rate go up and down so rapidly nor so dramatically. It was very bizarre.
Well here are the results:
Lying 10 minutes: blood pressure = 108/54, heart rate = 74
Standing 3 minutes: blood pressure = 122/80, heart rate = 126
Standing 10 minutes: blood pressure = 80/54 (I was a little woozy), heart rate = 126-142
They ran off rhythm strips and tried to catch my heart when it was at the really high heart rates and then when it was at the really low heart rates.
Dr. Li said it was most bizarre and the only thing he could figure was that it was the malfunction of my autonomic nervous system. Most bizarre we all agreed. He stated that in the information he was going to sent to Vanderbilt he was going to document the huge heart rate variences during this office visit.
Needless to say, I was very tired after that and did take my beta blocker before I left the office.
So, I need to go through this one more time when I go to Vanderbilt. Flying in this condition--yuck!
So, Dan took me home and I hit the couch. I did feel better by evening, still not real punky, but better off.
The moral of the story is that the beta blockers I take to control my heart rate, truly do give me quality of life.
A little after 1100 the PA student came in and we got started. Dr. Li poked his head in and said he wanted to do something a little different today, he wanted my hooked up to the heart monitor while we did the various blood pressure checks. It turned out to be a good thing as during the entire process my heart rate would rapidly change. One moment it would be at 70 then it would jump up to 130's then it would drop back down to the 70's and 80's, then it would jump back up to 140's, 150's and even 160's. Then three different times my heart rate would be way up and then boom, it would rapidly drop down to 35 and the low 40's. It freaked the PA student out a little. She asked me if I was okay. I was a little freaked out too. In this entire four year process I have never seen my heart rate go up and down so rapidly nor so dramatically. It was very bizarre.
Well here are the results:
Lying 10 minutes: blood pressure = 108/54, heart rate = 74
Standing 3 minutes: blood pressure = 122/80, heart rate = 126
Standing 10 minutes: blood pressure = 80/54 (I was a little woozy), heart rate = 126-142
They ran off rhythm strips and tried to catch my heart when it was at the really high heart rates and then when it was at the really low heart rates.
Dr. Li said it was most bizarre and the only thing he could figure was that it was the malfunction of my autonomic nervous system. Most bizarre we all agreed. He stated that in the information he was going to sent to Vanderbilt he was going to document the huge heart rate variences during this office visit.
Needless to say, I was very tired after that and did take my beta blocker before I left the office.
So, I need to go through this one more time when I go to Vanderbilt. Flying in this condition--yuck!
So, Dan took me home and I hit the couch. I did feel better by evening, still not real punky, but better off.
The moral of the story is that the beta blockers I take to control my heart rate, truly do give me quality of life.
Thursday, October 20, 2005
Well, my appointment is on hold. Dr. Li is in the cath lab with the same patient that caused me to be rescheduled last week. Ironic isn't it? So, I called Lana, who is my ride, and she is okay with me just calling her when they are ready and she'll still come and get me. The doctor's office is supposed to check back with me at 3:30 to let me know how things are going. If not, they will squeeze me in tomorrow.
I really don't want to go all weekend feeling like this. But, I'll do what ever it takes.
I really don't want to go all weekend feeling like this. But, I'll do what ever it takes.
Entry for October 19, 2005
Whew. What a tough day. I'm not standing up too much today. I wasn't able to do much today. Lying down a lot. Easily short of breath. Got a ride to church tonight. Lost my air just walking from the house to the car. Didn't go down stairs at church. Waited for the kids to come back up into the classroom. I had to go up about 6 steps to go out of the church from the Sunday school building and I had to set down as soon as I made it up the stairs. It really surprised me.
Taking 1/2 benadryl tonight for sleep. It seems to really help.
One more day until my appointment, then I can take my beta blocker again.
Heart rates have been around 120-130's with standing.
Whew. What a tough day. I'm not standing up too much today. I wasn't able to do much today. Lying down a lot. Easily short of breath. Got a ride to church tonight. Lost my air just walking from the house to the car. Didn't go down stairs at church. Waited for the kids to come back up into the classroom. I had to go up about 6 steps to go out of the church from the Sunday school building and I had to set down as soon as I made it up the stairs. It really surprised me.
Taking 1/2 benadryl tonight for sleep. It seems to really help.
One more day until my appointment, then I can take my beta blocker again.
Heart rates have been around 120-130's with standing.
Tuesday, October 18, 2005
Entry for October 18, 2005
Well, I tossed and turned until 1am and then I got up and went and propped up on the couch and went right to sleep. Some nights I just sleep better propped up and I can't get comfortably propped up high enough in bed. So, the couch is just right for propping me up and I can breathe so much easier.
Today I did pretty good but did get a little short of breath during the day. So, I didn't go into the rink today. I became really, really short of breath at 6pm tonight. It didn't get better until about 7:00. I am having some chest pain, but it is better than not being able to breathe.
I will take 1/2 a benadryl for sleep tonight. I have a ride into church planned for tomorrow. I just need to get a ride into Dr. Li's on Thursday for my tests. Dan can take me home, but not pick me up. I just need to ask someone...
I can't believe how bad I felt just a few minutes ago!
Okay, time to laugh at Jody moment. I was very anxious on Sunday night. So, I try my best to remember what to do when I get that way. I have several different tips and tricks that I use. One of my most important tools is my SILLY PUTTY! It really really helps. Well, I couldn't find my Silly Putty, anywhere, so that was making me even more anxious. (The good news is that on Tuesday I found my silly putty in my bedside table). I started drawing and doodling and it really helped.
So, here I am tonight, feeling comfortable just knowing that I know where my silly putty is!!!
I'm just not feeling so hot right now, so I better close for the day.
Entry for October 17, 2005
Monday again. I had a great burst of energy this morning. Got into the middle of several projects and then poof - I started feeling just exhausted. So, I have stuff strewn everywhere! It sure would be nice to finish one thing that I start :)
Really anxious again tonight. I worked all day at keeping my mind busy and relaxing the brain, but that didn't work out.
Took 1/2 a benadryl this evening. Hope it helps me to sleep.
Entry for October 16, 2005
Today is a busy day at church. Another candidate is trying out. I'm tired, but surviving. I thought I would have a few days before I started noticing that I didn't have the atenolol on board. I am very foggy today. Emotions are running high at the church and it is extremely draining when I do feel good.
Today was almost too much. The high heart rate makes me a little anxious as it is, but to add stress to the mix... Talk about a basket case.
I'm back to taking the 1/2 a benadryl before bed. It does help.
Entry for October 15, 2005
Short of breath and fatigued today. I did make it to the ice rink but cut some of the lessons short. I also took a break in between classes and open skate.
I went home and rested.
October 14, 2005
Last night I didn't feel well at all. A lot of chest pain. It just makes me feel bad all over and uncomfortable. I did sleep through the night.
I took a nap this morning from 8-9.
I had my doctor appointment with Dr. Li today. Well, it actually got rescheduled because he had to go do a heart cath at the hospital. But, I did get to visit with him about holding my meds for those blood pressure and heart rate tests that Vanderbilt wants documented and faxed as soon as possible. Those results will help them to determine if I will be seen as an inpatient versus an outpatient.
Anyway, Dr. Li agreed that we would need to hold the meds for about five days and then he would like to perform the test himself. So, Starting tomorrow no atenolol and no florinef. I see him Thursday afternoon and will be his last patient so he can spend as much time with me as needed. He sincerely reminded me that it would be a hard week without the atenolol and I would probably become anxious. He instructed me to call him with any problems. We discussed what measures I could take for my chest pain that wouldn't interfere with Thursday's test results.
Dan and I are also making plans to try and anticipate me not feeling well. Like getting rides for me and what things I should probably plan on canceling. Being without the Florinef does not worry me near as much as going without the atenolol. That is what keeps my heart rate down. Even while I am on it my heart rate while standing ranges from 100-130's. But, I will need to do this again the week before I go to Vanderbilt so this will be a good test for me to know what to expect and to plan accordingly.
Tonight I don't feel so hot again. My chest is really hurting and I'm tired. But, I did go to Interim today after my canceled doctor appointment and stayed until 5.
I'm going to bed now. Not feeling good.
Well, I tossed and turned until 1am and then I got up and went and propped up on the couch and went right to sleep. Some nights I just sleep better propped up and I can't get comfortably propped up high enough in bed. So, the couch is just right for propping me up and I can breathe so much easier.
Today I did pretty good but did get a little short of breath during the day. So, I didn't go into the rink today. I became really, really short of breath at 6pm tonight. It didn't get better until about 7:00. I am having some chest pain, but it is better than not being able to breathe.
I will take 1/2 a benadryl for sleep tonight. I have a ride into church planned for tomorrow. I just need to get a ride into Dr. Li's on Thursday for my tests. Dan can take me home, but not pick me up. I just need to ask someone...
I can't believe how bad I felt just a few minutes ago!
Okay, time to laugh at Jody moment. I was very anxious on Sunday night. So, I try my best to remember what to do when I get that way. I have several different tips and tricks that I use. One of my most important tools is my SILLY PUTTY! It really really helps. Well, I couldn't find my Silly Putty, anywhere, so that was making me even more anxious. (The good news is that on Tuesday I found my silly putty in my bedside table). I started drawing and doodling and it really helped.
So, here I am tonight, feeling comfortable just knowing that I know where my silly putty is!!!
I'm just not feeling so hot right now, so I better close for the day.
Entry for October 17, 2005
Monday again. I had a great burst of energy this morning. Got into the middle of several projects and then poof - I started feeling just exhausted. So, I have stuff strewn everywhere! It sure would be nice to finish one thing that I start :)
Really anxious again tonight. I worked all day at keeping my mind busy and relaxing the brain, but that didn't work out.
Took 1/2 a benadryl this evening. Hope it helps me to sleep.
Entry for October 16, 2005
Today is a busy day at church. Another candidate is trying out. I'm tired, but surviving. I thought I would have a few days before I started noticing that I didn't have the atenolol on board. I am very foggy today. Emotions are running high at the church and it is extremely draining when I do feel good.
Today was almost too much. The high heart rate makes me a little anxious as it is, but to add stress to the mix... Talk about a basket case.
I'm back to taking the 1/2 a benadryl before bed. It does help.
Entry for October 15, 2005
Short of breath and fatigued today. I did make it to the ice rink but cut some of the lessons short. I also took a break in between classes and open skate.
I went home and rested.
October 14, 2005
Last night I didn't feel well at all. A lot of chest pain. It just makes me feel bad all over and uncomfortable. I did sleep through the night.
I took a nap this morning from 8-9.
I had my doctor appointment with Dr. Li today. Well, it actually got rescheduled because he had to go do a heart cath at the hospital. But, I did get to visit with him about holding my meds for those blood pressure and heart rate tests that Vanderbilt wants documented and faxed as soon as possible. Those results will help them to determine if I will be seen as an inpatient versus an outpatient.
Anyway, Dr. Li agreed that we would need to hold the meds for about five days and then he would like to perform the test himself. So, Starting tomorrow no atenolol and no florinef. I see him Thursday afternoon and will be his last patient so he can spend as much time with me as needed. He sincerely reminded me that it would be a hard week without the atenolol and I would probably become anxious. He instructed me to call him with any problems. We discussed what measures I could take for my chest pain that wouldn't interfere with Thursday's test results.
Dan and I are also making plans to try and anticipate me not feeling well. Like getting rides for me and what things I should probably plan on canceling. Being without the Florinef does not worry me near as much as going without the atenolol. That is what keeps my heart rate down. Even while I am on it my heart rate while standing ranges from 100-130's. But, I will need to do this again the week before I go to Vanderbilt so this will be a good test for me to know what to expect and to plan accordingly.
Tonight I don't feel so hot again. My chest is really hurting and I'm tired. But, I did go to Interim today after my canceled doctor appointment and stayed until 5.
I'm going to bed now. Not feeling good.
Friday, October 14, 2005
Last night I didn't feel well at all. A lot of chest pain. It just makes me feel bad all over and uncomfortable. I did sleep through the night.
I took a nap this morning from 8-9.
I had my doctor appointment with Dr. Li today. Well, it actually got rescheduled because he had to go do a heart cath at the hospital. But, I did get to visit with him about holding my meds for those blood pressure and heart rate tests that Vanderbilt wants documented and faxed as soon as possible. Those results will help them to determine if I will be seen as an inpatient versus an outpatient.
Anyway, Dr. Li agreed that we would need to hold the meds for about five days and then he would like to perform the test himself. So, Starting tomorrow no atenolol and no florinef. I see him Thursday afternoon and will be his last patient so he can spend as much time with me as needed. He sincerely reminded me that it would be a hard week without the atenolol and I would probably become anxious. He instructed me to call him with any problems. We discussed what measures I could take for my chest pain that wouldn't interfere with Thursday's test results.
Dan and I are also making plans to try and anticipate me not feeling well. Like getting rides for me and what things I should probably plan on canceling. Being without the Florinef does not worry me near as much as going without the atenolol. That is what keeps my heart rate down. Even while I am on it my heart rate while standing ranges from 100-130's. But, I will need to do this again the week before I go to Vanderbilt so this will be a good test for me to know what to expect and to plan accordingly.
Tonight I don't feel so hot again. My chest is really hurting and I'm tired. But, I did go to Interim today after my canceled doctor appointment and stayed until 5.
I'm going to bed now. Not feeling good.
I took a nap this morning from 8-9.
I had my doctor appointment with Dr. Li today. Well, it actually got rescheduled because he had to go do a heart cath at the hospital. But, I did get to visit with him about holding my meds for those blood pressure and heart rate tests that Vanderbilt wants documented and faxed as soon as possible. Those results will help them to determine if I will be seen as an inpatient versus an outpatient.
Anyway, Dr. Li agreed that we would need to hold the meds for about five days and then he would like to perform the test himself. So, Starting tomorrow no atenolol and no florinef. I see him Thursday afternoon and will be his last patient so he can spend as much time with me as needed. He sincerely reminded me that it would be a hard week without the atenolol and I would probably become anxious. He instructed me to call him with any problems. We discussed what measures I could take for my chest pain that wouldn't interfere with Thursday's test results.
Dan and I are also making plans to try and anticipate me not feeling well. Like getting rides for me and what things I should probably plan on canceling. Being without the Florinef does not worry me near as much as going without the atenolol. That is what keeps my heart rate down. Even while I am on it my heart rate while standing ranges from 100-130's. But, I will need to do this again the week before I go to Vanderbilt so this will be a good test for me to know what to expect and to plan accordingly.
Tonight I don't feel so hot again. My chest is really hurting and I'm tired. But, I did go to Interim today after my canceled doctor appointment and stayed until 5.
I'm going to bed now. Not feeling good.
Thursday, October 13, 2005
Today is a home day. Didn't sleep to well last night. I mean I didn't wake up a lot, but I was very restless and had weird dreams. I've been feeling a little anxious over the last couple of days.
The wind is up today. I was tired this morning so I took a nap from 8-9 am.
Ozzie and I went outside for about an hour. It's like an Indian Summer almost. Can't believe we've already had snow and then rain, rain, rain. Things are wet but that's a good thing for us.
The garden is cleaned up except for the leaf lettuce. I'm going to keep it going as long as possible. The green house is very full of pepper plants and tomatoes. I'm not sure why the peppers were so delayed, but we are going to have a huge booming pepper crop!
Well, I'm kinda of in a fog today. Feel off and out of it. But, I am making myself do things, but it is really, really hard.
The wind is up today. I was tired this morning so I took a nap from 8-9 am.
Ozzie and I went outside for about an hour. It's like an Indian Summer almost. Can't believe we've already had snow and then rain, rain, rain. Things are wet but that's a good thing for us.
The garden is cleaned up except for the leaf lettuce. I'm going to keep it going as long as possible. The green house is very full of pepper plants and tomatoes. I'm not sure why the peppers were so delayed, but we are going to have a huge booming pepper crop!
Well, I'm kinda of in a fog today. Feel off and out of it. But, I am making myself do things, but it is really, really hard.
Wednesday, October 12, 2005
Skated for 1/2 an hour today then went to church for Awanas. Tired and dragging. I just couldn't seem to get excited about anything. Feel a little foggy and tired.
Tired when we got home from church. We had snacks for supper and went to bed.
The good news is that I am still not needing the benadryl at night. The herbal meds are working great for my legs!
Tired when we got home from church. We had snacks for supper and went to bed.
The good news is that I am still not needing the benadryl at night. The herbal meds are working great for my legs!
Tuesday, October 11, 2005
Monday, October 10, 2005
Sunday, October 09, 2005
Went to Interim on Friday for four hours. I was really beat. No nap on Friday.
Saturday I skated for two hours. I then went to the grocery store on the way home and picked up the bare essentials. Tired when I got home but I did okay overall.
The last three nights I have not taken any benadryl for sleep. And, I am sleeping well without it.
Today I made it to Sunday School, AM church and evening church all by myself. (Dan is in Valentine visiting with his Dad and Jim. I did not take a nap this afternoon but did rest.
I've had some chest pain the last couple of nights, not sure why.
I am very tired tonight. I should sleep well.
With it being dark still at 6:30am I am having a really hard time dragging myself out of bed! It just doesn't seem right to get up before the sun!!!
I wasn't sure what I was going to do tomorrow. But, I think I need a day at home to rest up from Friday, Saturday and today's activities. I have found if I don't give myself a break, I just keep getting a little more run down each day until a crash occurs.
Dan should be home late tomorrow.
Sunday, Oct 9, 2005 - 08:10pm
Saturday I skated for two hours. I then went to the grocery store on the way home and picked up the bare essentials. Tired when I got home but I did okay overall.
The last three nights I have not taken any benadryl for sleep. And, I am sleeping well without it.
Today I made it to Sunday School, AM church and evening church all by myself. (Dan is in Valentine visiting with his Dad and Jim. I did not take a nap this afternoon but did rest.
I've had some chest pain the last couple of nights, not sure why.
I am very tired tonight. I should sleep well.
With it being dark still at 6:30am I am having a really hard time dragging myself out of bed! It just doesn't seem right to get up before the sun!!!
I wasn't sure what I was going to do tomorrow. But, I think I need a day at home to rest up from Friday, Saturday and today's activities. I have found if I don't give myself a break, I just keep getting a little more run down each day until a crash occurs.
Dan should be home late tomorrow.
Sunday, Oct 9, 2005 - 08:10pm
Thursday, October 06, 2005
Orthostatic this am. After Dan left for work I layed down and slept really hard until 9am. I was really dragging today. Got to moving this afternoon cooked supper and made extra for some people from church whose son was in the hospital in Denver and just got back home.
Boy, am I ever tired. Dan is cleaning up the supper dishes for me. He is priceless!!
Some CP today. I really noticed in the shower and now while I am just sitting here.
I held my Atenolol and florinef this am. I need to send some vital signs to Vanderbilt and wanted them to be without drugs on board. Not an ideal situation, but I want them to have the uncorrected blood pressure and heart rate readings.
Boy, am I ever tired. Dan is cleaning up the supper dishes for me. He is priceless!!
Some CP today. I really noticed in the shower and now while I am just sitting here.
I held my Atenolol and florinef this am. I need to send some vital signs to Vanderbilt and wanted them to be without drugs on board. Not an ideal situation, but I want them to have the uncorrected blood pressure and heart rate readings.
Wednesday, October 05, 2005
Doing pretty good today. This morning when fixing breakfast I was fighting feeling orthostatic. That means I usually just give up and sit down to fix the meal and Dan's lunch. After he went to work I layed down for about an hour. Max curled up with me under the quilt. (of course we were on the couch--my buddy).
I feel pretty good, but not as well as I did on Monday. I'm having some cp and tiredness. But, still I feel better than I did this time last week.
I received my packet from Vanderbilt yesterday. I have two appointments on Jan 31st. The first one is for some basic autonomic testing at 1230. Then, I actually see the doctor at 2:30pm. They also sent several forms for me to fill out. Some to bring back with me to my appointment and some that I need to fill out and fax back immediately. They will use those faxed forms to determine if it would be more appropriate to see me as an inpatient vs. an outpatient.
There are a couple of motels that provide medical discounts for Vanderbilt clients. One is a Days Inn. I guess I need to start hunting for plane tickets. Due to the time of year, we will have to fly out of Casper. The roads and weather are far too unpredictable at that time of year.
And speaking of unpredictable weather-SNOW!!! Everywhere. I worked out in the garden/greenhouse yesterday for about 2 hours moving things into the greenhouse and trying to salvage what I could in case it frosted. Who knew we would get soooo much snow. Had I known it was going to snow I would have done somethings differently. Oh, well.
I skate today for 1/2 an hour and then we start AWANA's tonight at church.
So, I will be taking it easy for the rest of the day to conserve my energy!
I feel pretty good, but not as well as I did on Monday. I'm having some cp and tiredness. But, still I feel better than I did this time last week.
I received my packet from Vanderbilt yesterday. I have two appointments on Jan 31st. The first one is for some basic autonomic testing at 1230. Then, I actually see the doctor at 2:30pm. They also sent several forms for me to fill out. Some to bring back with me to my appointment and some that I need to fill out and fax back immediately. They will use those faxed forms to determine if it would be more appropriate to see me as an inpatient vs. an outpatient.
There are a couple of motels that provide medical discounts for Vanderbilt clients. One is a Days Inn. I guess I need to start hunting for plane tickets. Due to the time of year, we will have to fly out of Casper. The roads and weather are far too unpredictable at that time of year.
And speaking of unpredictable weather-SNOW!!! Everywhere. I worked out in the garden/greenhouse yesterday for about 2 hours moving things into the greenhouse and trying to salvage what I could in case it frosted. Who knew we would get soooo much snow. Had I known it was going to snow I would have done somethings differently. Oh, well.
I skate today for 1/2 an hour and then we start AWANA's tonight at church.
So, I will be taking it easy for the rest of the day to conserve my energy!
Tuesday, October 04, 2005
Monday, October 03, 2005
Sunday, October 02, 2005
Entry for October 02, 2005
A little rough this morning. My intestines decide to have another run-away, like on Monday. But, I made it to Sunday school, I was a little late.
Church was good. Everyone asked where Dan was at as he never misses.
NO NAP today!!!!!
I worked on restringing my guitar. Jerry from church gave me a whole set of guitar strings and wouldn't take any money for them. I think he wants me to play with the choir for specials. I have not played since college. Dan and his big mouth:)
I made it to evening service too! All by myself!
Dan made it back home by 9pm. He was very sore and stiff, but was able to haul out about 20 cords of wood. I felt bad that he had to do it all by himself. I guy offered him all of this wood for free if he would come and get it on Sunday only. It was down by Laramie on one of the mountains.
A little rough this morning. My intestines decide to have another run-away, like on Monday. But, I made it to Sunday school, I was a little late.
Church was good. Everyone asked where Dan was at as he never misses.
NO NAP today!!!!!
I worked on restringing my guitar. Jerry from church gave me a whole set of guitar strings and wouldn't take any money for them. I think he wants me to play with the choir for specials. I have not played since college. Dan and his big mouth:)
I made it to evening service too! All by myself!
Dan made it back home by 9pm. He was very sore and stiff, but was able to haul out about 20 cords of wood. I felt bad that he had to do it all by himself. I guy offered him all of this wood for free if he would come and get it on Sunday only. It was down by Laramie on one of the mountains.
Saturday, October 01, 2005
Entry for October 01, 2005
I made it to skating today. I didn't do near as well as last Saturday, but hey, I made it!
Fell asleep on the couch waiting for supper to get done.
I have been sleeping better. I am still taking the benadryl but only 1/2 a tablet. That seems to be the magic dose for not having that am hang over feeling.
Dan will be gone all day tomorrow. He is leaving at 3 am. So, I fixed all of his food for tomorrow to take with him.
I over did today. Feel so awful with fatigue and tiredness. I'm off to bed.
I made it to skating today. I didn't do near as well as last Saturday, but hey, I made it!
Fell asleep on the couch waiting for supper to get done.
I have been sleeping better. I am still taking the benadryl but only 1/2 a tablet. That seems to be the magic dose for not having that am hang over feeling.
Dan will be gone all day tomorrow. He is leaving at 3 am. So, I fixed all of his food for tomorrow to take with him.
I over did today. Feel so awful with fatigue and tiredness. I'm off to bed.
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